It’s Official: The LGMD community celebrates adoption of ICD-10 diagnostic codes for LGMD
After a two year campaign, those with LGMD will now have a diagnostic code that matches their diagnosis! C3 is proud to have played a role in this victory alongside our friends and advocacy partners, including the Muscular Dystrophy Association, CureLGMD2i, Jain Foundation, Kurt+Peter Foundation, LGMD Awareness Foundation, LGMD1D DNAJB6 Foundation, LGMD2i Research Fund, and the Speak Foundation. Read more here.
A new paper, “CaMKIIβ Signaling drives expression of metabolic and stress response genes in skeletal muscle, and its loss contributes to the LGMDR1 phenotype,” was recently published in the journal Human Molecular Genetics. It was authored by a multi-institutional group led by Dr. Melissa Spencer, C3 Scientific Advisory Board Chair and Professor of Neurology and... Read More
C3 was proudly represented in Washington, D.C. at the 2026 LGMD Day on the Hill, hosted by The Speak Foundation. C3 Advocacy Chair Melina Garza was selected as a 2026 delegate and had the privilege of leading the Texas and North Carolina delegation through a packed day of advocacy on Capitol Hill. The day began... Read More