Privacy Policy

Effective date: September 1, 2026

Coalition to Cure Calpain 3 (C3) is committed to protecting the privacy of our community. To better protect your privacy, we provide this notice explaining our information practices. We define personal information to include name(s), email address, mailing address, phone number, organization/institution affiliations, title, survey responses and content of your correspondence with us.

If at any time you have questions about our practices, please email us at info@curecalpain3.org.

When you contact info@curecalpain3.org or use the contact form, your email address and other information included in your email may be forwarded to the appropriate person(s) within C3 or our professional advisors for a response. A copy of your correspondence may be retained by C3 as well as by the responding individual.

C3 may share data with other companies who process data on behalf of our organization or provide other services (i.e., email service providers, data collection tools, data processors) as well as services related our website (i.e., payment processors, website hosting companies) to fulfill our mission. Such companies will only receive information necessary to provide the respective services and will be bound by confidentiality agreements limiting the use of such information and contractual obligations requiring those companies to respect your privacy rights and the security of your personal information.

The C3 website provides links to other sites that may be of interest. C3 is not responsible for the privacy practices or content of other such websites.

You may opt out of receiving any, or all, email communications from us by following the unsubscribe link or by contacting us at info@curecalpain3.org .