Patient Registry

The LGMD2A/Calpainopathy Registry is an online registry for people with calpainopathy. Individuals with LGMD2A/R1 or LGMDD4 are eligible to enroll. It is sponsored by Coalition to Cure Calpain 3 and hosted by the National Organization for Rare Disorders (NORD®). This registry collects information from participants (or their authorized representatives) who are affected by calpainopathy.