Advocacy

C3 Attends the 2025 International LGMD Conference

C3 was proud to be a part of the International LGMD Conference which convened July 18-20 in Orlando, Florida. This event is hosted by the Speak Foundation and focuses on all subtypes of LGMD. Among the highlights:

  • Learning the latest news about LGMDs during sessions focused on Understanding Diagnoses and Genetic Test Reports, Current Drug Development Pathways, Advocacy Opportunities, Emerging Treatments, and more!
  • Reconnecting with old friends and meeting new ones at our C3 Meetup for individuals and families affected by calpainopathy
  • Taking in the scientific poster session, where we learned about the latest LGMD research over wine and cheese.
  • Cheering during the awards ceremony, where Carol Abraham, Founder of the LGMD Awareness Foundation and member of C3 Board of Directors, received the LGMD Community Impact Award and Dr. Kevin Campbell, Professor and Chair, University of Iowa Department of Molecular Physiology and Biophysics and member of C3 Scientific Advisory Board was honored with the Scientific Excellence Award
Dr. Campbell waits to speak during the session “How Does an Idea Become a Drug? Moving from the Lab to Clinical Trials”
Ms. Abraham receives the LGMD Community Impact Award
C3-hosted meetup for individuals and families impacted by calpainopathy
Leadership of LGMD organizations were out in full force! From left to right: Jessica Evans, The Speak Foundation, Daniel Ferguson, Daniel Ferguson LGMD Foundation, Dr. Jennifer Levy, Coalition to Cure Calpain 3, and John Graybill, Beyond Labels and Limitations

Recent Posts

  • New Research Alert! "The Energy Switch"

    A new paper, “CaMKIIβ Signaling drives expression of metabolic and stress response genes in skeletal muscle, and its loss contributes to the LGMDR1 phenotype,” was recently published in the journal Human Molecular Genetics. It was authored by a multi-institutional group led by Dr. Melissa Spencer, C3 Scientific Advisory Board Chair and Professor of Neurology and... Read More
    Jennifer Levy Research Updates

  • C3 on Capitol Hill: LGMD Day on the Hill 2026

    C3 was proudly represented in Washington, D.C. at the 2026 LGMD Day on the Hill, hosted by The Speak Foundation. C3 Advocacy Chair Melina Garza was selected as a 2026 delegate and had the privilege of leading the Texas and North Carolina delegation through a packed day of advocacy on Capitol Hill. The day began... Read More
    Michele Wrubel Advocacy