The Speak Foundation, in partnership with the LGMD Awareness Foundation and the CureLGMD2i Foundation, has announced the launch of five LGMD Centers of Excellence, a US-based network of academic medical centers designed to coordinate multidisciplinary care and to improve clinical
Dr. Melissa Spencer provides update on development of an LGMD2A/R1 gene therapy
Melissa Spencer, PhD, Chair of the C3 Scientific Advisory Board and Professor of Neurology at UCLA, recently presented during a webinar hosted by the Muscular Dystrophy Association (MDA). The presentation, aimed at educating the public, gave an excellent background about
New research alert! Expert consortium publishes LGMD2A/R1 longitudinal data
The GRASP-LGMD Consortium is a group of doctors, physical therapists, and clinical research coordinators who collaborate to measure how the symptoms of LGMD change over time. Studies like this, called Natural History Studies, are critical for the design of future