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Awareness

COVID-19 Resources for the LGMD2A/R1 Community

Like many across the world, we at C3 are staying home to protect ourselves and others during the COVID-19 pandemic. While working from home, we continue to advance our mission of supporting research to find a cure for LGMD2A/R1. The

Jennifer Levy May 1, 2020May 1, 2020 Awareness, C3 News Read more

Dr. Timothy Dalton Spins for a Cure!

We are grateful to Dr. Timothy Dalton for generously donating his winnings of $7,700 from his March 2, 2020 appearance on the popular television game show “Wheel of Fortune” to C3! As a non-profit organization dedicated to funding research efforts

Jennifer Levy March 3, 2020March 3, 2020 Awareness, C3 News, Uncategorized Read more

Join Coalition to Cure Calpain 3 in celebrating Rare Disease Day!

Rare Disease Day takes place on the last day of February every year, with the goal of raising awareness about rare diseases and their impact on patients’ lives. Over 300 million people are living with one or more of over

Jennifer Levy February 28, 2020February 27, 2020 Awareness Read more

C3 Grant Awardee Featured in LGMD Awareness Day Spotlight Interview

Coalition to Cure Calpain 3 (C3) has recently awarded a research grant to Dr. Antoine Dufour. The project, titled ‘Unbiased Systems-wide Investigation of Calpain 3 in Patients with LGMD2A/R1 Using Mass Spectrometry,’ aims to better understand the biological role of

Jennifer Levy February 12, 2020February 12, 2020 Awareness, C3 News, Research Projects Read more

2019 – The C3 Year In Numbers

2019 was a busy year for Coalition to Cure Calpain 3! During the past year we: • Funded two new research projects: Funding was awarded to Dr. Jaakko Sarparanta, Folkhälsan Research Center and the University of Helsinki, and Dr. Nicholas

Jennifer Levy December 31, 2019December 31, 2019 Awareness, C3 News Read more

Double your donation on Giving Tuesday 2019

    A “C3 Champion” has made a commitment to match every dollar donated on Giving Tuesday, up to $25,000. Your contribution today to support scientific research for those families impacted by the muscle-wasting disease LGMD2A/R1 (a form of calpainopathy)

Jennifer Levy December 3, 2019 Awareness, C3 News Read more

C3 Scientific Director Dr. Jennifer Levy Appointed to Muscular Dystrophy Coordinating Committee

The Muscular Dystrophy Coordinating Committee (MDCC) is a federal advisory committee that aims to coordinate the activities repeated to muscular dystrophy research across the National Institutes of Health (NIH) and other federal programs including the Centers for Disease Control and

Jennifer Levy November 4, 2019November 1, 2019 Awareness, C3 News Read more

Together we are STRONGER: 5th Annual LGMD Awareness Day is Coming Up!

The 5th annual Limb Girdle Muscular Dystrophy Awareness Day is coming up on September 30, 2019. Help C3 raise awareness of LGMD in your community and through social media. It’s time to: 1. Start planning to wear Lime Green on

Jennifer Levy September 11, 2019 Awareness, C3 News Read more

May 20 is Clinical Trials Awareness Day

It is CLINICAL TRIALS AWARENESS day… C3 often gets asks, are there any clinical trials underway for LGMD2A (a form of calpainopathy)? Yes! One form of clinical trial, called a natural history study, is currently underway. This type of study

Jennifer Levy May 20, 2019 Awareness, C3 News Read more

C3’s 2018 Year in Review

Happy New Year! We at Coalition to Cure Calpain 3 (C3) thank our Board of Directors for working alongside us and our generous donors for helping us realize these achievements in 2018: THREE NEW RESEARCH GRANTS AWARDED IN 2018 Development of Gene

Jennifer Levy January 2, 2019 Awareness, C3 News, Research Projects Read more
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Recent Posts

  • Community Health Clinic publishes newsletter focused on LGMDs
  • New Research Alert: GRASP-001 Study
  • Upcoming Event: International LGMD Conference
  • Sarepta Community Update on LGMD Programs
  • C3 Celebrates Rare Disease Day

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