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C3 is Increasing Scientific Collaboration to Fight LGMD2A/R1

C3 is Increasing Scientific Collaboration to Fight LGMD2A/R1

Coalition to Cure Calpain 3 (C3) initiates scientific collaboration to bring the best minds together to fight limb-girdle muscular dystrophy type 2A (LGMD2A/R1). Working to cure LGMD2A/R1 requires connecting ideas, scientists, clinicians, patient groups and companies to elevate research to

Jennifer Levy November 10, 2020November 10, 2020 10 Years of Progress, Awareness, C3 News Read more

C3 is Connecting Patients to Clinical Studies

Coalition to Cure Calpain 3 is a vital hub connecting patients with limb-girdle muscular dystrophy type 2A (LGMD2A/R1) to clinical studies. In celebration of ten years of progress in our mission to fund research for a cure and raise global awareness, we

Jennifer Levy November 3, 2020November 3, 2020 10 Years of Progress, Awareness, C3 News, Clinical research study Read more

Building the First LGMD2A/R1 Patient Registry

Coalition to Cure Calpain 3 (C3) has launched the first and only limb-girdle muscular dystrophy type 2A (LGMD2A/R1) patient registry. In celebration of ten years of progress in our mission to fund research for a cure and raise global awareness,

Jennifer Levy October 27, 2020October 27, 2020 10 Years of Progress, Awareness, C3 News Read more

C3 is connecting patients with one another!

Coalition to Cure Calpain 3 is a vital hub connecting patients with limb-girdle muscular dystrophy type 2A (LGMD2A/R1) with one another. In celebration of ten years of progress in our mission to fund research for a cure and raise global

Jennifer Levy October 20, 2020October 20, 2020 10 Years of Progress, Awareness, C3 News Read more

C3 is Building Scientific Leadership

Coalition to Cure Calpain 3 is leading the charge to assemble the best scientific minds to solve limb-girdle muscular dystrophy type 2A (LGMD2A/R1). In celebration of ten years of progress in our mission to fund research for a cure and build

Jennifer Levy October 13, 2020October 13, 2020 10 Years of Progress, Awareness, C3 News Read more

C3 is Putting LGMD on the Map!

Coalition to Cure Calpain 3 is putting limb-girdle muscular dystrophy type 2A (LGMD2A/R1) on the map! In celebration of ten years of progress in our mission to fund research for a cure and raise global awareness, C3 is proud to

Jennifer Levy October 6, 2020October 19, 2020 10 Years of Progress, Awareness, C3 News, Uncategorized Read more

C3 Celebrates a Decade of Achievement

C3 Celebrates a Decade of Achievement

Coalition to Cure Calpain 3 (C3) has come a long way in ten years in driving science and awareness to treat limb girdle muscular dystrophy, type 2A (known as LGMD2A/R1, LGMD R1 Calpain 3 related, or calpainopathy). In celebration of ten

Jennifer Levy October 1, 2020October 1, 2020 10 Years of Progress, Awareness, C3 News, Research Projects Read more

The 6th Annual LGMD Awareness Day is Coming Up!

The 6th Annual LGMD Awareness Day is Coming Up!

September is Muscular Dystrophy Awareness Month and on September 30 we will be celebrating the 6th annual LGMD Awareness Day worldwide! You can help C3 raise awareness for LGMD in your community and through social media. Today we are proud

Jennifer Levy September 1, 2020September 1, 2020 Awareness, C3 News Read more

May 20 is Clinical Trials Day

Clinical Trials Day occurs every year on May 20 to recognize the people who conduct clinical research trials and to provide an opportunity to raise awareness of clinical trials. This date was chosen to commemorate the day that James Lind

Jennifer Levy May 20, 2020May 20, 2020 Awareness, C3 News, Clinical research study Read more

Research survey for rare disease patients and their families about impacts of COVID-19

Rare disease patients and caregivers who live in the USA: How are you being impacted by the novel coronavirus pandemic? Please complete a 20-minute online research survey from home to share your experiences. This study is being conducted by the

Jennifer Levy May 15, 2020May 15, 2020 Awareness Read more
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Recent Posts

  • Community Health Clinic publishes newsletter focused on LGMDs
  • New Research Alert: GRASP-001 Study
  • Upcoming Event: International LGMD Conference
  • Sarepta Community Update on LGMD Programs
  • C3 Celebrates Rare Disease Day

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