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Rare disease stakeholders connect at 2017 RARE Patient Advocacy Symposium

Rare disease patients, caregivers, representatives from advocacy organizations, and other rare disease stakeholders met on May 19, 2017 in Philadelphia for the 2017 RARE Patient Advocacy Symposium, a partnership of Global Genes and the Penn Medicine Orphan Disease Center. The

Jennifer Levy May 22, 2017May 22, 2017 C3 News, Uncategorized Read more

C3 Awards Grant to Dr. Melissa Spencer to Screen for Calpain 3 Targets

Coalition to Cure Calpain 3 (C3) is excited to announce that we are funding a new research project with Dr. Melissa Spencer at the University of California Los Angeles. The project is titled “Identification of calpain 3 substrates through use

Jennifer Levy May 18, 2017 C3 News, Research Projects Read more

Coalition to Cure Calpain 3 Announces Conclusion of Current Request for Application

The C3 RFA that was announced on September 15, 2016 is drawing to a close, and we request that all submissions, which we have been receiving on a rolling basis, be sent to Dr. Jennifer Levy no later than June

Jennifer Levy May 5, 2017May 5, 2017 C3 News, Funding opportunity Read more

C3 supports generation of new LGMD2A disease model for research

C3 is excited to announce that we are funding a research project with Dr. Cathleen Lutz, Director of the Rare and Orphan Disease Center at The Jackson Laboratory in Bar Harbor, Maine. Dr. Lutz works with researchers and disease foundations

Jennifer Levy April 28, 2017May 2, 2017 C3 News, Disease models, Research Projects Read more

C3 Lends Support to New Initiative in Genetic Testing for LGMD2A Patients

Coalition to Cure Calpain 3 is excited to announce that we are funding the MYO-SEQ project at the John Walton Muscular Research Centre at Newcastle University (UK). We are partnering with several patient organizations and biopharmaceutical companies to support this

Jennifer Levy April 26, 2017April 27, 2017 C3 News, genetic testing Read more

Welcome!

Welcome to C3’s ‘News’ page! C3 will use this space to provide updates on the latest happenings at C3, as well as in the limb girdle muscular dystrophy type 2A (LGMD2A)/calpainopathy research field. Please re-visit this page often for continued

michele@curecalpain3.org March 29, 2017April 27, 2017 C3 News No Comments Read more
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