Over the next few days, we’ll be sharing “LGMD2A/R1 Stories” so you can learn more about the C3 Community as we raise money together to drive scientific research toward a cure for this muscle-wasting disease. Today, meet Rexton:
Hi, I’m Rexton and I have LGMD2A/R1. I was six years old when I was diagnosed. My symptoms mostly affect the muscles in my legs, arms, and back. I get tired more easily than other kids, and things like climbing stairs can be surprisingly hard. Because of that, playing sports at school can be a challenge, and sometimes it’s tough feeling like I don’t fit in with other kids who play sports all the time.
Even with these challenges, I love staying connected to the things and people that make me happy. I enjoy playing video games, hanging out with my friends, Boy Scouts, and watching college football with my dad — it’s one of my favorite things to do.
A cure would mean the entire world to me. If there were a treatment that could reverse the condition or even just stop it from getting worse, I would be forever grateful. And if only one person in my family could receive that cure, I would want it to go to my brother, Walker. If a cure ever becomes real, I know I would cry with happiness.