Over the next few days, we’ll be sharing “LGMD2A/R1 Stories” so you can learn more about the C3 Community as we raise money together to drive scientific research toward a cure for this muscle-wasting disease. Today, meet Brooklyn:
Hi, my name is Brooklyn Garza, and I am 18 years old living with Limb-Girdle Muscular Dystrophy 2A/R1. I first showed signs when I was young, like struggling with stairs, moving slower than others my age, and falling often. I was diagnosed at age 9, and over time the weakness and contractures in my legs have made daily life more challenging. In 2020 I had double heel lengthening surgery, which helped me keep walking. I have also taken part in several research studies and trials because I want to help move us closer to a cure.
Living with LGMD affects many parts of my day, from needing help with basic tasks to using a wheelchair or scooter for longer distances. A cure or even a treatment that slows the progression would mean everything. I continue to believe there is hope for a better future.