Over the next few weeks, we’ll be sharing “LGMD2A/R1 Stories” so you can learn more about the C3 Community as we raise money together to drive scientific research toward a cure for this muscle-wasting disease. Today, meet Andy:
Hi I’m Andy Robertson. I was diagnosed with LGMDR1 at 18 (I’m now 45). For years I could think of nothing but a cure for this relentless disease. I hoped and prayed I would be saved from the loss of my mobility, and in 2006 my dreams came through: I was one of 13 people worldwide to be part of the first multi-site trial for adult-onset muscular dystrophies. Sadly the trial didn’t work and a few years later I needed a power wheelchair to get around.
I like to think I don’t let the disease stop me from enjoying life. I hold a Masters, a PhD degree, have run multiple businesses and charities, have an amazing son (now 12) and a partner I am thankful for every day. Life is not easy with this disease and I haven’t lost hope of a treatment or cure one day in my lifetime. I truly believe organizations like C3 will be what gets the breakthrough we all dream of and one day we’ll have some kind of treatment.