Community Health Clinic publishes newsletter focused on LGMDs

LGMD2A/R1 is considered a rare disease because it affects only about 1 in 100,000 people. However, certain areas of the world have a higher prevalence. Indiana’s Adams and Jay Counties have the highest concentration of individuals living with LGMD2A/R1: more than 1 in 400 babies are born with this condition. This is the result of a founder mutation in the Old Order Amish population in those counties.

The Community Health Clinic is a 501(c)(3) nonprofit healthcare facility located in Shipshewana, Indiana that is the medical home for LGMD patients in these communities. Their latest newsletter is focused on LGMDs, highlighting genetics, nutrition and rehabilitation, topics that we at C3 get asked a lot about. You can read the newsletter here: https://www.indianachc.org/news/spring-summer-2025-newsletter