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Clinical research study

New Research Alert: GRASP-001 Study

New data from the GRASP-001 study identify clinical outcome assessments for future LGMD2A/R1 clinical trials A team of LGMD researchers, called the GRASP-LGMD Consortium, published the baseline results of their LGMD2A/R1 clinical outcome study in the Annals of Clinical and Translational Neurology.

Jennifer Levy April 22, 2025April 22, 2025 C3 News, Clinical research study, Research Projects, Uncategorized Read more

What can YOU do to drive LGMD2A/R1 research forward? Participate in a natural history study!

What is a natural history study? A natural history study is a research study that collects information about the genetics, symptoms, and lived experiences of individuals. These studies are considered observational, because they do not include an interventional drug or

Jennifer Levy October 18, 2024October 21, 2024 Awareness, Clinical research study Read more

Sarepta Therapeutics recruits for clinical outcomes assessment study

C3 is pleased to share this opportunity on behalf of Sarepta Therapeutics: Sarepta welcomes individuals with LGMD2A/R1 to join a clinical outcomes assessment study. To learn more about the study, visit journeyLGMD.com

Jennifer Levy June 7, 2024June 7, 2024 C3 News, Clinical research study Read more

New natural history study recruiting individuals with LGMD2A/R1 in France

Coalition to Cure Calpain 3 is pleased to share information regarding a natural history study being conducted in France. Patients must be affiliated with French social security to participate. Additional inclusion criteria is detailed in the flyer below. If you

Jennifer Levy May 16, 2024May 16, 2024 C3 News, Clinical research study Read more

WATCH: Sarepta presents webinar about new natural history study for individuals living with LGMD2A/R1

Sarepta Therapeutics recently joined C3 to present a community webinar titled “Journey Update for the LGMD2A/R1 Calpainopathy Community.” During the webinar, Sarepta discussed the essential role for natural history studies throughout the drug development process. They then shared the design

Jennifer Levy April 17, 2024April 17, 2024 C3 News, Clinical research study Read more

C3 hosts Sarepta to present webinar about the JOURNEY natural history study

Click here to register!

Jennifer Levy March 16, 2024March 16, 2024 C3 News, Clinical research study Read more

Trial readiness study for individuals with LGMD2A/R1

Please contact either Ruby Langeslay or Jennifer Raymond at Virginia Commonwealth University for more information

Jennifer Levy January 25, 2024January 25, 2024 C3 News, Clinical research study, Uncategorized Read more

Casimir Recruiting LGMD2A/R1 Patients for At-Home Study

The Casimir LGVA study is quickly filling! We are specifically seeking individuals with LGMD2A who can walk across a room and stand up from sitting on a couch to participate. Email LGMDS@casimirtrials.com or call (800)542-0948 for more information.

Jennifer Levy August 23, 2022August 22, 2022 C3 News, Clinical research study, Patient-focused drug development, Research Projects Read more

Have you participated in a clinical research study?

Attention Individuals with LGMD2A/R1: Coalition to Cure Calpain 3 wants to hear from you! If you have participated in clinical research, such as a natural history study, an observational study, or a clinical trial, please follow this link to answer

Jennifer Levy February 15, 2022February 15, 2022 Clinical research study Read more

Will YOU help advance LGMD2A/R1 research by participating in the GRASP-LGMD Natural History Study?

Natural history studies collect information about the symptoms and progression of a disease in the absence of an intervention. It is vital to understand natural history so that researchers can plan for clinical trials to determine if an investigational drug

Jennifer Levy May 26, 2021January 11, 2022 C3 News, Clinical research study, Research Projects Read more
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Recent Posts

  • Community Health Clinic publishes newsletter focused on LGMDs
  • New Research Alert: GRASP-001 Study
  • Upcoming Event: International LGMD Conference
  • Sarepta Community Update on LGMD Programs
  • C3 Celebrates Rare Disease Day

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