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Month: May 2023

May 20 is Clinical Trials Day

On this day, C3 would like to take the opportunity to discuss the DRUG DEVELOPMENT PROCESS for rare diseases such as LGMD2A/R1. DISCOVERY: Drug development usually begins in the laboratory, where researchers seek to gain new insights into a disease process. With a

Jennifer Levy May 20, 2023May 19, 2023 Awareness Read more

New “Voice of the Patient” report highlights unmet medical needs of six subtypes of LGMD, including LGMD2A/R1

Today, Coalition to Cure Calpain 3 joins five other LGMD patient organizations (collectively referred to as The LGMD Coalition*) to release the ‘Voice of the Patient Report’ summarizing outcomes from the September 2022 Externally-Led Patient Focused Drug Development Meeting (EL-PFDD).

Jennifer Levy May 15, 2023May 15, 2023 C3 News, Patient-focused drug development Read more

Recent Posts

  • Community Health Clinic publishes newsletter focused on LGMDs
  • New Research Alert: GRASP-001 Study
  • Upcoming Event: International LGMD Conference
  • Sarepta Community Update on LGMD Programs
  • C3 Celebrates Rare Disease Day

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